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As a family, we have such an incredibly improved quality of life. It’s hard to put in to words how difficult the years have been, every minute waiting for the inevitable seizure to occur. We’ve been able to let our guard down a bit and it feels good. I have been employed at the Epilepsy Foundation of Greater Chicago for the past sixteen years and am engaged with many clients who have very refractory seizures. Statistically, 30% of people affected by epilepsy don’t gain adequate seizure control from the therapies available today. Since FDA approved medication for epilepsy never seems to come quickly enough for those suffering with seizures, it’s my belief that this unique CBDa formulation would be embraced by families coping with refractory epilepsy. An improved quality of life and respite from ongoing uncontrolled seizures is so very important because ongoing seizures can have such devastating consequences. This population of refractory patients is desperate to have better control. There are so many who could benefit from this amazing product and my wish is that each of those people would have the opportunity that Noel has had to try it. I’d be happy to answer any questions you might have about Noel’s journey. Retired pharmacist ALS symptoms improved with chylobinoid I’m a recently retired pharmacist of 48 years, the last 35 of which have been spent in a hospital/clinical setting. I’ve specialized in inpatient pain control for the last 20 years. I was diagnosed with bulbar-onset ALS (amyolateral sclerosis) roughly one year ago. I’ve been taking and continue to take FDA-approved ALS medications and have now exhausted all that traditional medicine can presently provide. There are very few agents that are classified as true neuroprotectives and CBD is one of them. A few months ago, I obtained a ‘green card’ and tried CBD oil bought in a registered cannabis dispensary. I subsequently noticed a slight improvement in my speech and swallowing since trying this, but nothing remarkable. My recent use of Synthonics’ “chylobinoid” drug (metallo-CBDa) has been a different story; when I take it, I’ve noticed an increased improvement in my speech, likely due to its increased bioavailability, or possibly its greater affinity and effect on certain receptors. The ultimate point here is not the exact mechanism of chylobinoid’s increased efficacy, but the fact that it simply seems to work better than ‘regular’ CBD oil and I greatly prefer it to the CBD products I’ve tried. I would recommend it wholeheartedly to other ALS patients in hopes that their experience will be as positive as mine. Teenage boy with rare genetic disorder has “breakthrough periods” with improved ability to stay on task is more socially engaged after taking chylobinoid. Our son, John, was 4 years old when he had his first seizure. Like many cases of epilepsy diagnosed during childhood, his was not a very typical presentation. He was simply found clinging to a piece of playground equipment, not letting go or responding to the adults who