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van der Steen, J. T., Radbruch, L. Hertogh, C., Boer, M. E., Hughes, L., Larkin, P.,…Volicer, L. (2014). White paper defining optimal palliative care in older people with dementia: A Delphie study and recommendations from the European Association for Palliative Care. Palliative Medicine , 28 (3), 197–209. Wee, B., & Hillier, R. (2008). Interventions for noisy breathing in patients near to death. Cochrane Database of Systematic Reviews (1). Retrieved from Art. no.: CD005177. doi: 10.1002/14651858.CD005177.pub2 Wilders, H., & Menton, J. (2002). Death rattle prevalence, prevention and treatment. Journal of pain and symptom management , 23 (4), 310–317. Willmott, L., White, B. P., & Downie, J. (2013). Withholding and withdrawal of “futile” life-sustaining treatment: Unilateral medical decision making in Australia and New Zealand. Journal of Law and Medicine , 20 (4), 907–924. Wolf-Klein, G., Pekmezaris, R., Chin, L., & Weiner, J. (2007). Conceptualizing Alzheimer’s disease as a terminal medical illness. American Journal of Hospice and Palliative Medicine , 24 (1), 77–82. World Wide Palliative Care Alliance. (2014) Global atlas of palliative care at the end of life . Retrieved from http://www. who.int/nmh/Global_Atlas_of_Palliative_Care.pdf Helen Smith is manager, Speech Pathology Department, The Queen Elizabeth Hospital (CALHN) and has been a member of the Speech Pathology Australia Ethics Board since 2008. Dr Belinda Kenny is a Research Fellow, the University of Sydney, and has been a member of the Speech Pathology Australia Ethics Board since 2010.

NSW Health. (2005). Guidelines for end-of-life care and decision-making . Retrieved from http://www0.health.nsw.

gov.au/policies/gl/2005/pdf/GL2005_057.pdf PCC4U. (2013). Palliative care curriculum for

undergraduates . Retrieved from http://www.pcc4u.org/ Perrels, A. J., Fleming, J., Zhao, J., Barclay, S., Farquhar, M., Buiting, H. M., Brayne, C., & The Cambridge City over- 75’s Cohort (CC75C) study collaboration. (2014). Place of death and end-of-life transitions experienced by very old people with differing cognitive status: Retrospective analysis of a prospective population-based cohort aged 85 and over. Palliative Medicine , 28 (3), 220–233. Sharp, H.M., & Shega, J. W. (2009). Feeding tube placement in patients with advanced dementia: the beliefs and practice patterns of speech-language pathologists. American Journal of Speech-Language Pathology , 18 (3), 222–230. SA Government. (2013). Advanced Care Directives Act . Retrieved from http://www.sahealth.sa.gov.au/wps/wcm/ connect/public+content/sa+health+internet/about+us/ legislation/advance+c Speech Pathology Association of Australia (SPA). (2010). Code of ethics . Melbourne: Author. Speech Pathology Association of Australia (SPA). (2014). Ethics education package . Melbourne: Author. Stirling, C, Andrews, S., McInerney, F., Toye, C., Ashby, M., & Robinson, A. (2011). Talking about dementia and dying: A discussion tool for aged care residential facility staff . Hobart: Print Press. The University of Queensland and Blue Care Practice Development Centre. (2012). The palliative approach tool kit . Retrieved from http://www.caresearch.com.au/ caresearch/tabid/2840/Default.aspx Torke, A. M., (2014). Building the evidence base for palliative care and dementia. Palliative Medicine , 28 (3), 195–196. van der Steen, J. T. (2010). Dying with dementia: What we know after more than a decade of research. Journal of Alzheimer’s Disease , 22 , 37–55.

Correspondence to: Helen Smith Manager, Speech Pathology Department The Queen Elizabeth Hospital 28 Woodville Rd, Woodville South SA phone: (08) 8222 7618 email: Helen.smith4@health.sa.gov.au

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