Connective Issues Winter 2018

TRIBUTES

WE REMEMBER AND HONOR We are grateful to our members and friends who have made contributions in memory of, or in honor of, the following individuals. These donations are fully appreciated and support our programs and services that create a brighter future for all those living with Marfan syndrome and related connective tissue disorders.

ANTOINE MARFAN LEGACY SOCIETY

Only through your donations can we create a brighter future for the thousands of children and families living with Marfan syndrome and related disorders. The Antoine Marfan Legacy Society recognizes those who are building a personal legacy that reflects the priorities of their lives and funds those priorities far into the future. All planned giving donors receive membership in the Society. We can help individuals and families tailor current and planned gifts that are appro- priate for their personal estate planning needs for today and for years to come. Planned giving vehicles include wills and bequests, life insurance, appreciated property, charitable remainder trusts, and charitable lead trusts. For more information and to discuss your plans, please contact Megan Martin, director of national philan- thropy, mmartin@marfan.org or 516.883.8712, ext. 160.

Donations In Memory of: Carol, Adrian, and Elias Adame

Bryan Butvick Austin Carlile Louise Chudnofsky Leo Cole Kartik Dhumawat James Dickey Haley Dostalik Deej Edwards Jay Elliott Chandler Fliege Heather Gooch Azaria Halttunen William Harvey Stephen Infalt Barbara Lerman Jerry Lerman Jonathan Lerman Sydney Lerman Owen Lipinski Joshua Looney Ward Malloy Kyle Mann Michael Miller Ryan O'Sullivan Reed Pyeritz, MD, PhD Lisa Ritell

Sandra Marinbach Mary McCabe Sheridan Patrick McCabe Patricia McNeill Patricia Moran Sandy Morris Anne Newman William Otterson Michael Pass Christopher Paulsen Alan Pinkerton Emily Rauschenbach Andrew Rexroth David Ricca Ilene Roberts Betty Santina Spencer Sellas Mark Silver Stephen Simeone Phyllis Taylor Collin Trebesch LuVan Voris Shraga Feivel Ben Avner V'rachel Zachary Wallace Brock Robertson Ethan Robinson Kathy Robinson Julie Roos Wendy Weiss Becky White Victor Willhoite Aubry Woodbridge Jeffrey Wurst Donations In Honor of: Aaron Aguayo Edith Black

Shana Albough Mary Anderson Flora Andrews Vicki Asbury Barbara Ausbrooks McKenzie Bailey Zoe Mae Bayouth William Biehl Barbara Bowling Billie Jean Buckalew Richard Bunting Thelma Drobac Clifton Durand Thomas Duzzie Todd French Amelia Giampietro Jay Goret Stephanie Green Fred Hearn John Heinemann James Hinds Dwight Hurst Allen Jacobs Ann Jarosz Gail Johnson Michael Jordan Nancy Kugel Jonathan Larson Ron LeHew Don Manderfeld Sarah Cayo Alex Connor Connie Cooke Jacquie Dixon Philip Dreier

Lynn Sakai Lilly Shaw Jean Shenk

Colin Shields Sarah Singh Casey Sprouse Seth Tennant Stephanie Tokos Sonja Vogel Linda Watts Emily Wheeler Jane Zore

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