Connective Issues Winter 2014
NON PROFIT ORG. U.S. POSTAGE PAID RIPON, WI PERMIT NO. 100
22 MANHASSET AVENUE PORT WASHINGTON, NY 11050
Did you know that skeletal features are key in raising suspicion of Marfan syndrome?
Read more about the survey findings on page 8
There are many outward signs that should raise the suspicion of Marfan syndrome. The most common are features in the bones and joints.
Less than one month
One to three months
More than a year
Four to six months
Seven months to a year
40% of people got their diagnosis in less than a month, but for nearly 25% it took more than a year.
Long, Flexible Fingers
Flexible or Loose Joints
Tall For My Family
1 5 out of
Nearly 20% of patients said they, or a family member, had operations that were likely due to Marfan syndrome before they were actually diagnosed with the disorder!
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Bone Issues (shoulders,legs,knees,joints)
Tendon, ligament, joint problems
Chest bone repair
*Data based on the “Know the Signs: Marfan Syndrome and Related Disorders” survey conducted by The Marfan Foundation through SurveyMonkey. The survey was conducted between 7/28/13 and 8/18/13 with 1277 responses. Designed by Kyle Lord.
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