Directions Spring 2020

SUMMIT OF STRENGTH W E B I N A R

Cure SMA Launches Summit of Strength Virtual Webinar Series

For the past 2 years, Cure SMA’s Summit of Strength program has brought together thousands of SMA community members for the opportunity to network and learn about the latest advances in treatment, care, advocacy, and support. Considering event cancellations across the country due to the ongoing pandemic, Cure SMA launched the Summit of Strength Virtual Webinar Series. These virtual webinars started in May and will run through the summer, bringing experts into your home to speak on a variety of educational topics tailored to help individuals and families with SMA during this life in quarantine. Presentations will include family support and patient care topics like those that may have been shared at our in-person Summits, while also touching on new and beneficial topics that arise as time goes on. Also, during each webinar, attendees will hear a brief presentation from one our Summit of Strength presenting sponsors: AveXis, Biogen, or Genentech.

While we look forward to returning to in-person Summit of Strength events when we are able, we hope you will consider joining us virtually. If you have any questions, please contact familysupport@curesma.org.

Thank you to the National Presenting Sponsors for the 2020 Summit of Strength Programs: AveXis, Biogen, and Genentech. We would also like to recognize Platinum Sponsor, Scholar Rock, for its support.

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DIRECTIONS | SPRING 2020

UPDATES

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