Directions Spring 2020

9th Annual Kennady’s DreamCure SMA Walk-n-Roll On September 25, 2019, families from all over Wisconsin gathered for the 9th Annual Kennady’s DreamWalk-n-Roll, which is held each year at Fox Brook Park in Brookfield, WI, in memory of Kennady Quinnell. Despite the rain and clouds, all guests still enjoyed the walk around the park, a delicious lunch, and a great raffle filled with some fun prizes. With help and lots of love from friends, family, and supporters, the event raised more than $24,000 ! These funds will go towards providing wagons to other SMA families, as well as research and education to continue working toward finding a cure for SMA. Thank you to all the teams that came out to help raise funds and a huge thank you to Corey, Erin, and Charlotte Quinnell for all their hard work this year in planning another great event.

Washington Nationals Awareness Game Thank you to all the Cure SMA supporters and families for coming out to celebrate Cure SMA and spread awareness at Nationals Park in Washington, DC, on September 15, 2020!

Western New York Chapter

Schenectady PBA Black & Blue Golf Tournament

Thank you to everyone at the Schenectady PBA for making Cure SMA their charity of choice. On September 16, 2019, golfers gathered at the Van Patten Golf Club in Clifton Park, NJ, for a day of golf. Half of all the net proceeds were donated to Cure SMA, totaling $2,000 ! Thank you to Kyle Derkowski for inspiring this partnership.

Chapter Update

Wisconsin Chapter

Thank you to Amy Medina for her years of dedicated service to Cure SMA’s Wisconsin Chapter! Amy became involved with the Chapter when her son, Mateo, was diagnosed with SMA. As a leader in the SMA community for many years, Amy dedicated countless hours to helping newly diagnosed families, parents, and adults with SMA, connect with each other and local resources. She also shared her family’s story many times to help elevate SMA’s platform and spread awareness to get SMA added to the recommended newborn screening list. Amy will continue to be a proud community member by serving on the National Cure SMA Board.

2019 MadisonWalk-n-Roll On September 22, 2019, families from the Madison area and beyond, came together for the inaugural MadisonWalk-n-Roll. Even the gray and rainy weather could not keep more than 100 participants from raising over $14,000 . The morning started with a walk around the beautiful Brittingham Park in Madison, WI, and wrapped up with games and activities, a raffle, and a tasty pizza lunch. Thank you to Kristen Bausch, Christina Hayes, Nicole Fritts, and Melinda Heathcoat, for their hard work in getting this event off the ground and running, it was a very successful first year!

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DIRECTIONS | SPRING 2020

EVENTS RECAP