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Fall 2015
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VICTORY IS
SUSANNA HOLLINGSWORTH, FROM NORTH CAROLINA; CRYSTAL BRIDGES, FROM MONTANA;
ERIN VAN ANDEL, FROM WASHINGTON STATE; TERI JOYCE, FROM NEW JERSEY; AND DEBBIE
PHILLIPS FROM TENNESSEE — ALL MOMS OF CHILDREN WITH MARFAN SYNDROME, EHLERS-
DANLOS SYNDROME, OR LOEYS-DIETZ SYNDROME.
“Getting answers to
move past the unknown
and enjoy life.”
– DENISE DAMMANN, ROSEBURG, OR
“Having courage even when it’s hard.”
– OWEN GRAY, CYPRESS, TX
KAYLA BRIDGES, OF MONTANA, AND PHOEBE HOLLINGSWORTH, OF NORTH CAROLINA
HEATHER EARNHART, OF CHICAGO, WITH HER
DAUGHTER, GABRIELLA, WHO HAS MARFAN
SYNDROME
PETER DONATO A COLLEGE STUDENT FROM
FRAMINGHAM, MA, WHO HAS LOEYS-DIETZ
SYNDROME.