7 / 16
Fall 2016
7
ANNUAL CONFERENCE
CONFERENCE
THANKS
Special thanks to the following
individuals and companies who
were instrumental in making
this year’s conference a huge
success. We couldn’t be more
grateful for your time, talent,
and support!
HOST
Mayo Clinic
SPONSORS
Presenter
Aetna Foundation
Leader
Mayo Clinic
Invitae
Convener
Massachusetts Chapter of
The Marfan Foundation
Minnesota Chapter of
The Marfan Foundation
Contributor
Iowa Community Group
EXHIBITORS
Ambry Genetics
Invitae
PHOTOGRAPHY
Tim Joyce Photography
DR. ALAN BRAVERMAN AND HIS WIFE, RE-
BECCA, RECIPIENTS OF THE 2016 PRISCILLA
CICCARIELLO AWARD, WITH ISAIAH AUSTIN.
advocacy on Capitol Hill, interviews
about Marfan in a range of media, and
support of the Foundation’s Walk for
Victory program as National Walk
Ambassador.
Cheryll Gasner Spirit of Service Award:
Tim Joyce, volunteer photographer for
the Foundation for more than 15 years.
Cheryll Gasner Spirit of Service
Award:
Libby Sparks, APNG, Johns
Hopkins Hospital, for her outstanding
direct patient care and compassion and
devotion to the Marfan community.
The Foundation honored many other
members of the Marfan and related dis-
orders community for their successes in
the areas of education, awareness, and
fundraising. The awards were presented
at the conference to those who were in
attendance. Here is the complete list of
individuals, group leaders, and Walk for
Victory and marathon fundraisers.
Kid With a Heart Award:
Addison Izzo
Brody Lawson
Individuals:
Cheri Benjamin
Adam Bitterman
Emily Braverman
Rod Gray
Alix McLean Jennings
Ryan Melendez
Brooke Pulliam
Alison Weust
Maya Brown-Zimmerman for Alpha Phi
Omega-Theta Upsilon Chapter
Chapter/Community Group Leaders:
Rob Berklite: Mid-Atlantic Chapter
Jennifer Reisinger and her daughter,
Kelsey: Tidewater Community Group
Jon Rodis: Massachusetts Chapter
Brandi Smith: Nashville Community
Group
Sara Paul: Staten Island Community
Group
Walk for Victory Top Fundraiser for each Walk for Victory and
Top Marathon Fundraiser:
Atlanta: Becky Gunn
Boston: Suzy Chaos
Houston: Tyrelle Robert
Pasadena: Kaitlin Mattice
St. Louis: Gail Johnson
Scottsdale, AZ: Paula Bower
Tri-State, NY: Michael Kramer
Trussville, AL: Amber Harbison
2015 TCS NYC Marathon: Jamie Grant