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December 2017

www.speechpathologyaustralia.org.au

Speak Out

37

as at October 2017

WA 919

members

WA

To celebrate Speech Pathology Week 2017, the

Speech Pathologists at Princess Margaret Hospital

documented patient journeys to share with staff

and patients.

This gave us the opportunity to reflect on the role

SPs have whilst a child is in an acute setting,

transitions to outpatient services and back into

their community. It also allowed us to hear how our

families had been influenced by the work of SPs

and where our work had been most important to

them.

Ruby’s story highlighted the work we play in

intervention as well as education to families:

“Ruby is an almost 6 year old girl who has been

accessing speech pathology services since her

diagnosis of papillary thyroid cancer in October

2016. In December 2016 Ruby had a total

thyroidectomy, tracheal reconstruction and required

the formation of a tracheostomy. She has had

significant difficulties swallowing and achieving

voice to communicate.

Ruby had regular speech pathology input for

assessment and management of her swallow

safety. Ruby also recently had a full laryngeal

reconstruction and her swallow has improved to

the point that she can safely have normal food and

drink again (8months of having nasogastric tube

feeding for nutrition and hydration). She continues

to have a tracheostomy and now that her vocal

cords are cancer free and have been surgically

repaired she is able to tolerate a speaking valve

to enable expressive verbal communication.

Until this time she relied on a range of assistive

communication tools e.g. iPad with touch to speak

aps and key word signing plus developed buccal

speech which helped family/ regular communication

partners interpret Ruby’s messages. Ruby and her

family have had a stressful year as Ruby accessed

necessary treatment and therapy at PMH. She has

very regular reviews with a Speech Pathologist and

the ENT team to plan for safe decannulation of her

tracheostomy.

When Ruby’s parents reflected on the role Speech

Pathologists have had in Ruby’s recovery they

commented SP involvement was vital in helping

support the family in between medical treatments

and surgery. Ruby’s mother explained the

reassurance and next step information provided

by the Speech Pathologists they worked with,

were vital in supporting Ruby and her family regain

some control during difficult times. Ruby is now

participating with her peers at school. They didn’t

realise that speech pathologist’s assisted children

with swallowing, tracheostomy’s and voice until

Ruby was diagnosed and wanted to help educate

others of the diverse role speech pathology has for

patients like Ruby.”

It is sometimes difficult to properly highlight the

role Speech Pathologists have in rehabilitation. We

found sharing specific patient journeys a nice way

to draw attention to our important work.

Princess Margaret Hospital

Sharing communication access

ACT/

New south wales

ACT 82

NSW 2535

members

as at October 2017

On Thursday 9 November five members from ACT/

NSW Branch attended a welcome to the profession

event for final ACU, North Sydney students.

Branch members discussed their experiences

as a speech pathologist and gave advice to the

future graduates. There was a Q & A session

with questions ranging from working in private

practice, working overseas and how to maintain

skills across areas of practice. We were happy to

hear that nearly all students and staff were already

members of Speech Pathology Australia. A big

thank you to Wendy Pearce from ACU and our

student representative Bianca Lyons for organising

the event.

Welcome to the profession event

Puttanna Mahananda, Mary Woodward,

Andrea Vine, Lisa Forbes, Fiona Eastley,

Bianca Lyons