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JCPSLP

Volume 19, Number 2 2017

105

Ethical conversations

Susan Block

ultimately what I really value is my independence and this

combination affords me greatest control over my

professional experience. I do not end up doing the parts of

an academic role about which I may not be passionate

(e.g., some aspects of teaching, administration!). However,

a negative of private practice is that the role of a private

practice – to provide quality therapy to those who request

and who would benefit from it –can sometimes be in

conflict with that of a research clinician. For example, if

interested in a project on preschool stuttering, the project

criteria might stipulate that the children have stuttered for a

certain amount of time, but my clinical experience might

suggest that some of these children would benefit from

earlier commencement of treatment. Thus, at times there is

potential for conflict.

Another key tension in private practice is that a private

practice needs to be sustainable financially, whereas

sometimes conducting research ethically means it is not

possible to charge for a treatment, thus there is no income

generated from that client contact.

How do you determine your projects?

Often in collaboration with a team at another university;

sometimes from a clinical question that has come up from my

clinical experience, or a query from the literature. For example,

the Lidcombe Program treatment literature shows that

parents can find it a stressful experience to administer the

Lidcombe Program and I have found this in my practice. As

a result, I am evaluating the impact of a support group for

parents whose children are doing the Lidcombe Program.

To whom do you apply for ethics

approval?

This is a key reason for needing to collaborate with a university

or relevant body. Research with human participants requires

ethics approval

(https://www.nhmrc.gov.au/health-ethics/

human-research-ethics-committees-hrecs) and journals

require evidence of this to publish outcomes. The process

can be quite complicated so it is good to work with someone

who has experience of the paperwork and the process. It also

ensures we do the right thing by our clients/participants.

Have you met any conflicts of

interest or ethical problems in your

research and clinical practice?

One potential conflict is retaining client participants for the

entirety of the clinical trial in private practice, when the

I

n an attempt to demonstrate how clinicians can integrate

ethical practice, clinical research and clinical practice in a

private practice setting, Dr Brenda Carey has graciously

agreed to describe her experiences. Dr Carey has many

facets to her work. She completed her PhD while managing

an RCT comparing face-to-face and telehealth delivered

treatment for adults who stutter. She has an honorary

affiliation with the Australian Stuttering Research Centre at

Sydney University, is a clinical supervisor at La Trobe

University, a member of the Lidcombe Program and Camper­

down Program Trainers Consortia, and runs a successful

private practice in Melbourne. Brenda was interviewed by

Dr Susan Block, Senior Member, SPA Ethics Board.

How have you managed to blend

private practice and research?

I managed to link in with university research programs and

have been employed by, or collaborated with several

universities. That has great benefits – it enabled me to

choose what projects to be involved with. The combination

of workplaces is really interesting. To have the opportunity

to research your “most real” participants (your clients)

means sampling from an ecologically valid group. On the

other hand, I think not working in academia also brings a

cost because I believe that really interesting research

comes from really interesting ideas, and working with

people directly involved in research as their primary focus in

academia may be more likely to generate interesting ideas.

So does that mean that you get

added intellectual stimulation from

your university contact?

Yes, as a clinician in private practice I see the practical

application of research; but the negative is not being a part of

a think tank that is integral to the best academic environments.

The other negative is that I do not have ready access to funding

from within my workplace or the support mechanisms to do

research. Another negative of not working within a research

team at a university is less experience in designing research

projects, writing and publishing. I consider it far better to

have access to a team with experience in all these processes.

Why have you continued in private

practice and not academia, which

is more set up for research?

This is an issue that I continually grapple with as I enjoy

both, and both have very strong positives. However,

Ethics in clinical

practice

An interview with Dr Brenda Carey, clinician researcher

Susan Block