102
JCPSLP
Volume 17, Number 2 2015
Journal of Clinical Practice in Speech-Language Pathology
Finucane, T. E., Christmas, C., & Travis, K. (1999). Tube
feeding in patients with advanced dementia: A review of
the evidence.
Journal of the American Medical Association
,
282
(14), 1365–70.
Gamino, L. A., & Ritter, R. H., Jr. (2012). Death competence:
An ethical imperative.
Death Studies
,
36
, 23–40.
Gill, T. M., Gahbauer, E. A., Han, L., & Allore, H. G.
(2010). Trajectories of disability in the last year of life.
New
England Journal of Medicine
,
362
(13), 1173–1180.
Givens, J. L., Jones, R. N., Shaffer, M. L., Kiely, D. K., &
Mitchell, S. L. (2010). Survival and comfort after treatment
of pneumonia in advanced dementia.
Archives of Internal
Medicine
,
170
(13), 1102–1107.
Hennings, J., Froggatt, K. & Keady, J. (2010).
Approaching the end of life and dying with dementia in care
homes: the accounts of family carers.
Clinical Gerontology
,
20
, 114–117.
Kapo, J. M., (2011). Dementia. In L. Emanuel and S.
Lawrence Librach (Eds.),
Palliative care core skills and
clinical competencies
, (2nd ed.; pp. 464–470). Missouri:
Elsevier. Retrieved from http://www.sciencedirect.com/
science/article/pii/B9781437716191001451
Krishna, L. (2011). Nasogastric feeding at the end of life :
A virtue ethics approach.
Nursing Ethics
,
18
(4), 485–494.
Kuo, S., Rhodes, R., Mitchell, S., Mor, V., & Teno, J.
(2009). Natural history of feeding: tube use in nursing home
residents with advanced dementia.
Journal of the American
Medical Directors Association
,
10
(4), 264–270.
Lopez, R. P., Amella, E. J., Strumpf, N. E., Teno, J. M., &
Mitchell, S. L. (2010). The influence of nursing home culture
on the use of feeding tubes.
Archives of Internal Medicine
170
(1), 83–88.
Li, S. Q., Guthridge, S. L., Aratchige, P. E., Lowe, M.
P., Wang, Z., Zhao, Y., & Krause, V. (2014). Dementia
prevalence and incidence among the Indigenous and non-
Indigenous populations of the Northern Territory.
Medical
Journal of Australia
,
200
(8), 465–469.
Mitchell, S. L., Kiely, D. K., & Hamel, M. B. (2004a). Dying
with advanced dementia in the nursing home.
Archives of
Internal Medicine
,
164
, 321–326.
Mitchell, S. L., Kiely, D. K., Hamel, M. B., Park, P. S.,
Morris, J. N., & Fries, B. E. (2004b). Estimating prognosis
for nursing home residents with advanced dementia.
Journal of the American Medical Association
,
291
(22),
2734–2740.
Mitchell, S. L., Kiely, D. K., Lipsitz, L. A. (1997). The risk
factors and impact on survival of feeding tube placement in
nursing home residents with severe cognitive impairment.
Archives of Internal Medicine
,
157
(3), 327–332.
Mitchell, S. L., Miller, S. C., Teno, J. M., Kiely, D. K.,
Davis, R. B., & Shaffer, M. L. (2010). Prediction of 6-month
survival of nursing home residents with advanced dementia
using ADEPT vs hospice eligibility guidelines.
Journal of the
American Medical Association
,
304
(17), 1929–1935.
Mitchell, S. L., Teno, J. M., Kiely, D. K., Shaffer, M. L.,
Jones, R. N., Prigerson, H. G., … Hamel, M. (2009). The
clinical course of advanced dementia.
New England Journal
of Medicine
,
361
(16), 1529–1538.
Monteleoni, C., & Clark, E. (2004). Using rapid-cycle
quality improvement methodology to reduce feeding tubes
in patients with advanced dementia: Before and after study.
British Medical Journal
,
329
, 491–494.
National Health and Hospitals Reform Commission.
(2009).
A healthier future for all Australians: Final report
.
Retrieved from http://www.health.gov.au/internet/nhhrc/
publishing.nsf/content/nhhrc-report
understanding of the risks and burdens, and positive
attributes of interventions that may be offered to people with
advanced dementia. By rising to the challenge of advanced
dementia end-of-life management, SLPs may provide
ethically sound practice and facilitate a good and peaceful
death, free of suffering, for many people and their families.
Declaration
The authors report no conflict of interest. The authors alone
are responsible for the content and writing of the paper.
Note
1 Ethic of Care is a philosophical approach to health care ethics.
See SPA Ethics Education package (SPA, 2014) for further
information.
References
Alzheimer’s Australia. (2014).
Dementia care in the acute
hospital setting: Issues and strategies
. Position Paper 40.
Alzheimer’s Australia (WA) and Curtain University. (2010).
Key elements of a palliative approach for people with
severe and end stage dementia
. Retrieved from http://
www.caresearch.com.au/caresearch/portals/0/documents/
whatispalliativecare/NationalProgram/PCDementiaCOP/A5-
COP-booklet.pdf
Alzheimer’s Organisation. (2012). Alzheimer’s late-end
stage care giving. Retrieved from http://www.org/care/
alzheimers-late-end-stage-caregiving
Australian Bureau of Statistics (ABS). (2012).
Causes of
death, Australia, 2010
. ABS cat. no. 3303.0. Canberra: Author.
Australian and New Zealand Society for Geriatric
Medicine. (2010).
Dysphagia and aspiration in older people
.
Position Paper 12. Sydney: Author.
Australian Institute of Health and Welfare (AIHW).
(2012).
Dementia in Australia
. Cat. no. AGE 70. Canberra:
Author. Retrieved from http://www.aihw.gov.au/WorkArea/
DownloadAsset.aspx?id=10737422943
Commonwealth of Australia. (2009).
A healthier future
for all Australians: Final report of the national health and
hospitals reform commission
. Retrieved from http://www.
health.gov.au/internet/nhhrc/publishing.nsf/content/1AFDE
AF1FB76A1D8CA257600000B5BE2/$File/Final_Report_of_
the%20nhhrc_June_2009.pdf
Coleman, A. M. E. (2012). End-of-life issues in caring
for patients with dementia: the case for palliative care in
management of terminal dementia.
American Journal of
Hospice and Palliative Medicine
,
29
(1), 9–12.
Connor, S., Tecca, M, Lund-Person, J., & Teno, J. (2004).
Measuring hospice care: the National Hospice and Palliative
Care Organization national hospice data set.
Journal of Pain
and Symptom Management
,
28
(4) 316–328.
Daniel, K., Rhodes, R., Vitale, C., & Shega, J. (2013).
Feeding tubes in advanced dementia
. Position statement.
American Geriatrics Society. Retrieved from http://www.
americangeriatrics.org/files/documents/feeding.tubes.
advanced.dementia.pdf
Dekkers,W., Sandman, L., & Webb, P. (2002). Good
death or good life as a goal of palliative care. In H. ten Have
and D. Clark (Eds.),
The ethics of palliative care: European
perspectives
(pp. 106–125). Buckingham, UK: Open
University Press.
Dugdale, L. (2010). The art of dying well.
Hastings Center
Report
,
40
(6), 22–24.
Finucane, T. E., & Bynum, J. P. (1996). Use of tube
feeding to prevent aspiration pneumonia.
Lancet
,
348
(9038), 1421–1424.




