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46

JCPSLP

Volume 17, Supplement 1, 2015 – Ethical practice in speech pathology

Journal of Clinical Practice in Speech-Language Pathology

Ethical issues in augmentative and alternative communication

Bronwyn

Hemsley

range of practice of the Competency-Based Occupational

Standards (CBOS) for speech pathologists (Speech

Pathology Australia, 2011), existing theoretical frameworks

(e.g., participation model of AAC, the International

Classification of Functioning, Disability, and Health [World

Health Organization, 2001]), and the Speech Pathology

Australia Clinical Guideline on Augmentative and Alternative

Communication (2012b) are useful resources to help

guide clinicians in arriving at good clinical decisions. If at

all possible, at all stages in the process of providing AAC

services (see the participation model of AAC, Beukelman &

Mirenda, 2005), the person with complex communication

needs and their communication partners are engaged in

informing and making decisions on the course of action for

intervention (Williams, Krezman, & MacNaughton, 2008).

As do professionals in other areas of practice, speech

pathologists will continue to be confronted with situations

where the course of action might not be clear to all parties

involved in the decision. Complexities arise in clinical

decisions about communication interventions as people

with severe communication disabilities frequently have high

support needs owing to physical or cognitive impairments

and many areas of life participation are affected.

Ethical decision-making with the person with complex

communication needs or any other person responsible

includes consideration of: the facts on assessment findings,

all available intervention options and associated evidence,

risks and benefits associated with each course of action,

and values and beliefs of those involved in and affected

by the decision. Tension might exist between doing what

one

ought

to do and doing what one might be

able

or

supported to do within the clinician’s competencies and

available resources, wishes of the client, and workplace or

residential care policies. As such, it is important that speech

pathologists apply not only the Code of Ethics of the

Association (Speech Pathology Australia, 2010), but also

a theoretically sound ethical decision-making framework

(e.g., Speech Pathology Australia, 2002, 2012a; Markula

Centre, 2012). Arriving at an ethical decision also requires

consideration of a person’s rights (see United Nations

Convention on the Rights of Persons with Disabilities, 2006)

and legal position, as well as risks or benefits relating to

many other aspects of the person’s life and preferences.

Other ethical considerations

In addition to the general principles and issues noted

above, there are a number of ethical considerations relating

In this “Ethical conversations” some common

ethical issues and resources relevant to the

provision of augmentative and alternative

communication (AAC) or multi-modal

communication in Australia are discussed.

Guiding theoretical frameworks and

Association documents are related to topical

situations in speech pathology management

in populations with complex communication

needs. This paper is not intended as a review

of the literature or as a guideline in relation to

AAC practice which is forthcoming in the

Association’s Clinical Guideline on

Augmentative and Alternative

Communication. Rather, common issues that

might confront clinicians in the dynamic field

of AAC are discussed in the light of existing

theoretical frameworks and Association

documents. Bringing these issues to light at

this time of rapid change in the field may help

clinicians to arrive at good decisions to the

benefit of people with complex

communication needs and their families.

Guiding frameworks and principles

According to the St James Ethics Centre (n.d.), “Ethics is

about answering the question ‘What ought I to do?’” – a

question that arises in any clinical decision, ideally well

before any conflict or dilemma might arise. In recognition of

the importance of ethical decisions in speech pathology,

there are several resources pertaining to ethical practice

(see Body & McAllister, 2009; Chabon, Denton, Lansing,

Scudder, & Shinn, 2007; Speech Pathology Australia, 2002,

2010, 2012a) that are relevant in (a) assisting clinicians and

all stakeholders to arrive at good, balanced, and evidence

based decisions that are in the best interests of the person

with complex communication needs, and (b) providing

guidance to both prevent and resolve conflicts and

establish positive working relationships among all those

affected by a decision.

In the dynamic field of augmentative and alternative

communication (AAC), the multi-modal communication

Ethical issues in

augmentative and

alternative communication

Bronwyn Hemsley