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WINTER 2014

3

VICTORY IS...

“Victory is to wake up every day, knowing that I

am blessed to be alive, after an aortic dissection.

Before that day, I had no idea what Marfan was.

I know now. I am alive. That is victory for me.”

– MAYRA KOHLER, FACEBOOK FAN

WHAT IS VICTORY?

Spending more time with family,

finding a new Marfan friend,

having hope, saving lives. These

are a few of the ways people

defined victory during the 2013

annual family conference when

we revealed our new brand and

tagline, “Know the signs. Fight

for victory.” What does victory

mean to you?