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94

ACQ

Volume 12, Number 2 2010

ACQ

uiring knowledge in speech, language and hearing

aided language and Makaton key word signing facilitate oral

language. However, if Mandy is not convinced by Bev’s

information, it is her right to refuse to use aided language.

This would be very difficult for Bev, who knows how

important this is for the development of communication.

Professional integrity:

Bev is not a Makaton trainer, but could

show Mandy some signs and refer her to the Makaton DVD.

She could show Mandy and the teachers how to encourage

Jenny to sign using the “hand-over-hand” technique (http://

en.wikipedia.org/wiki/Tactile_signing)

. She could also assist

Mandy by informing her about the Adapted Learning website

(Adaptedlearning.com

), a website set up by Boardmaker™

for parents to share picture based resources. She could

inform Mandy about Boardmaker™ and try to encourage the

local library to purchase it. She realises the need to respond

to the many opportunity barriers, but does not have sufficient

hours to do so as effectively as she would like. She knows

that unless Mandy and Jenny’s teachers are motivated,

Jenny’s progress in learning Makaton will be slower than it

should be.

Case scenario: Rachel

Background

Rachel is a 21-year-old woman with traumatic brain injury

due to a hit-and-run car accident. While she is able to walk,

her fine motor skills have not improved as well as the health

professionals expected. Her parents and some family

members can understand her dysarthric speech, but she is

not understood by people who do not know her. She has a

Lightwriter™ but due to a tremor in her better hand, her

access is slow. She also has some problems with her

memory.

Rachel’s court case is scheduled for one month’s time.

She is determined to give evidence in court, but is very

anxious that she will not be understood, that she will be

slow when using her Lightwriter™, and that her evidence

will not be taken at full value. When giving evidence,

Rachel will need a communication assistant/facilitator to

assist in the interpretation of her speech or to convey the

messages composed on the Lightwriter™. At their last

speech pathology session funded by the Transport Accident

Commission (TAC;

http://www.tac.vic.gov.au/jsp/corporate/

homepage/home.jsp?gclid=CJHqsuyswJ0CFc0vpAodgB

RssA), Rachel’s speech pathologist, Susie, suggested that

she have a word-based communication board made up,

with sentences and phrases in case she becomes fatigued

during the long hearing. It may also help her remember some

important points she wishes to make. Rachel wants her

speech pathologist to support her in court, but Susie has not

been funded by TAC for this purpose.

Mandy is also concerned that if she introduces other ways

of communicating, Jenny will never learn to speak. Bev

can only offer her services monthly according to the service

model of her organisation because of the demand for

speech pathology services in her region.

Ethical dilemmas

Beneficence / non-maleficence:

Bev has a good

understanding of what Jenny needs and the critical

importance of introducing communication strategies

immediately. She has the skills to offer the support needed,

but does not know how she will do all this within a monthly

visit of 2 hours. If Bev does not provide support both to mum

and the teachers there is the potential for maleficence in that

negative attitudes will develop towards the communication

intervention and towards Jenny, placing strain on the system.

Bev is very aware that Mandy is already feeling stressed by

all the intervention Jenny will need. Bev realises that her

hours with the family would be most beneficial if directed to

developing Mandy’s skills and confidence in facilitating

Jenny’s communication and to working with the teachers,

rather than working directly with Jenny.

Truth:

There is evidence of the importance of early

intervention for AAC in establishing patterns for active

communication, for cognitive development, and for social

participation. Visual aids provide an immediate form of

communication, but have to be designed, produced, and

introduced in all communication environments. Makaton key

word signing is an unaided strategy and Jenny has

responded well to gesture, so there is good likelihood that

Jenny will take to Makaton. It is also very effective in

conveying meaning, but the system must be learnt by

Mandy and Jenny’s brother as well as the teachers. Bev also

sees the potential for a basic electronic communication aid

which she will need to apply for, and which again will require

training and monitoring.

Justice:

Bev needs many more funded hours for an effective

AAC intervention. In addition to applying for the

communication device, she needs to motivate and lobby for

a class aide for Jenny. Travelling to a centre where a

Makaton course may be held is not an option for Mandy, but

it is possible for her to purchase a DVD and learn Makaton

signing that way. This will require her to be very committed to

the task. A class aide would take much pressure off the

teachers, but Bev still needs to go through the process of

applying, and it may take time.

Autonomy:

Mandy has reservations about Makaton and

aided language which will impact on her attitude to learning

and implementing the communication strategies. Bev needs

to counsel Mandy to help her understand the evidence that