JCPSLP
Volume 14, Number 2 2012
67
competencies
. Melbourne: Communication Resource
Centre, Scope.
Brown, F., & Gothelf, C. (1996). Self-determination for
all individuals. In D. H. Lehr & F. Brown (Eds.),
People
with disabilities who challenge the system
(pp. 335–353).
Baltimore, MD: Paul. H. Brookes.
Carnaby, S. (2007). Developing good practice in the
clinical assessment of people with profound intellectual
disabilities and multiple impairment.
Journal of Policy
and Practice in Intellectual Disabilities
,
4
(2), 88–96. doi:
10.1111/j.1741-1130.2007.00105.x
Carter, M., & Iacono, T. (2002). Professional judgments
of the intentionality of communicative acts.
Augmentative &
Alternative Communication
,
18
, 177–191.
Clegg, J. (2010). A moment of change. In C. Bigby &
C. Fyffe (Eds.),
Fourth annual roundtable on intellectual
disability policy
(pp. 12–18). Melbourne: La Trobe University
Dewart, H., & Summers, S. (1996).
The pragmatics
profile of everyday communication skills in adults
. Windsor,
Berkshire: NFER-Nelson
Grove, N., Bunning, K., Porter, J., & Olsson, C.
(1999). See what I mean: Interpreting the meaning of
communication by people with severe and profound
intellectual disabilities.
Journal of Applied Research in
Intellectual Disabilities
,
12
, 190–203.
Iacono, T., & Caithness, T. (2009). Assessment issues. In
P. Mirenda & T. Iacono (Eds.),
Autism and augmentative and
alternative communication
(pp. 23–48). Baltimore, MD: Paul
H. Brookes.
Iacono, T., West, D., Bloomberg, K., & Johnson, H.
(2009). Reliability and validity of the revised Triple C:
Checklist of Communicative Competencies for adults
with severe and multiple disabilities.
Journal of Intellectual
Disability Research
,
53
(1), 44–53.
Johnson, H., Douglas, J., Bigby, C., & Iacono, T. (2009).
Maximizing community inclusion through mainstream
communication services for adults with severe disabilities.
International Journal of Speech-Language Pathology
,
11
,
180–190. doi: 10.1080/17549500902825265
Lecompt, J., & Mercier, C. (2007). The Montreal
Declaration on Intellectual Disabilities of 2004: An
important first step.
Journal of Policy and Practice in
Intellectual Disabilities
,
4
, 66–69. doi: 10.1111/j.1741-
1130.2006.00098.x
Light, J. (1989). Toward a definition of communicative
competence for individuals using augmentative and
alternative communication systems.
Augmentative and
Alternative Communication
,
5
, 137–144.
Marfo, K. (1992). Correlates of maternal directiveness
with children who are developmentally delayed.
American
Journal of Orthopsychiatry
,
62
, 219–233.
McLean, J., & Snyder-McLean, L. (1978).
A transactional
approach to early language training
Columbus. OH: Charles
E. Merrill.
McConkey, R., Purcell, M., & Morris, I. (1999). Staff
perceptions of communication with a partner who is
intellectually disabled.
Journal of Applied Research in
Intellectual Disabilities
,
12
, 204–210
Mostert, M. P. (2010). Facilitated communication
and its legitimacy: Twenty-first century
developments.
Exceptionality
,
18
, 31–41. doi:
10.1080/09362830903462524
National Joint Committee for the Communicative Needs
of Persons With Severe Disabilities. (1992). Guidelines for
meeting the communication needs of persons with severe
disabilities.
ASHA
,
34
(March, Supp. 7), 1–8.
relevant to the needs and situation of the person so that
they can be integrated into meaningful interactions and
activities, and (b) providing practical communication
support through initial modelling, ongoing advice, and a
willingness to evaluate the intervention and re-instigate
dynamic assessment strategies as needed.
Conclusion
A human rights framework, such as that outlined in this
paper and enshrined in the UNCRPD, promotes the
recognition of the diverse communication skills and
preferences of people with severe–profound disabilities. A
human rights framework for assessment and intervention is
inclusive of individuals whose communication may be
ambiguous or unintentional, and who may need extensive
support to communicate. Providing communication support
requires a commitment from all communication partners to
be willing to suspend his/her own interests and consider
those of the person with disability as distinct from the views
of his or her communication partners. Suspension of one’s
own beliefs demands (a) relinquishing assumptions or
beliefs about what a person with severe–profound
disabilities can achieve, and (b) embracing a process of
collaborative observation, interpretation, and development
of intervention goals and strategies informed by principles
of evidence based practice, the Association’s code of
ethics (Speech Pathology Australia, 2010), and ethical
decision-making frameworks. Australian speech
pathologists working with people with severe–profound
disabilities are bound by obligations under the UNCRPD;
hence our practice needs to acknowledge the inherent
value of all communication, whether intentional or not
intentional. In addition, our practice should be highly
collaborative and transactional, as exemplified by
incorporating models of person-centred practice and
supported decision-making. In this way, we may work
effectively towards people with severe–profound disabilities
gaining access to their communication rights to participate
in decisions that affect their lives.
References
American Speech-Language-Hearing Association (2005).
Roles and responsibilities of speech-language-pathologists
in service delivery for persons with mental retardation/
developmental disabilities
[Position Statement]. Retrieved
from
http://www.ash.org/members/deskref-journals/deskref/default
Beamer, S., & Brookes, M. (2001).
Making decisions:
Best practice and new ideas for supporting people with
high support needs to make decisions
. London: Values into
Action.
Beukelman, D., & Mirenda, P. (2005).
Augmentative and
alternative communication: Supporting children and adults
with complex communication needs
(3rd ed.). Baltimore,
MD: Paul H. Brookes.
Bloomberg, K., West, D., & Iacono, T. (2003). PICTURE
IT: An evaluation of a training program for carers of adults
with severe and multiple disabilities.
Journal of Intellectual
and Developmental Disability
,
28
, 260–282.
Bloomberg, K., West, D., & Johnson, H. (2004).
InterAACtion: Strategies for intentional and unintentional
communicators
. Melbourne: Communication Resource
Centre, Scope
Bloomberg, K., West, D., Johnson, H., & Iacono,
T. (2009).
The Triple C: Checklist of communication