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The new role of the patient in MDMs

«No decision about me without me»

Involving patients in decisions about their treatment is central to

UK health policy

and

embedded in the National Health Service (NHS) Constitution, with the current

government using the phrase “No decision about me without me” to describe their

aspiration for the NHS.

This study aim

To explore what current cancer patients know, and need to know, about the MDMs

involved in their care to ensure effective involvement in decision-making.

To examine cancer MDM members’ views on how best to ensure that patients are

involved in decision-making

To gain patient and MDM members views on how to overcome any barriers identified

and improve current practice.

Design and sample

Semi-structured interviews

were conducted

with current upper gastrointestinal and

gynaecological cancer patients

from one cancer centre

and with MDM members