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Speak Out

August 2013

17

The story of Margaret Bashford is an inspiring one!

Margaret was a highly respected receptionist at Charles

Sturt University in Albury.

She loved gardening, and creating including sewing and

craft. Margaret also enjoyed socialising – being with her

family and friends. All this changed when Margaret, aged

44, suffered a stroke in 2001. Luckily her sons Michael,

aged 18, and Paul, 13, were on hand to ring an ambulance.

She suffered right-sided weakness and aphasia and spent

several months in hospital.

Returning home after rehabilitation, visits from some

friends became less frequent. She was having trouble

communicating – her only means was a pen and paper,

writing down words and people guessing the rest of what

she wanted to say. This left her battling depression, with

feelings of emptiness, despair and extreme loneliness.

Margaret had extensive speech therapy to help her regain

her speech. Her main aim was to say her own name. After

this achievement, she felt immense guilt that she could not

say her husband or sons’ names – she began calling her

husband “Man”, her sons “Little man” and “Little person”,

and she called Kayla, the cat, “Little little person”. She also

hated having to rely on them to help her with everyday

activities like reading and understanding recipes, cutting

pumpkin, using a tin opener or vegetable peeler, getting

dressed, doing up buttons, and even brushing and styling

her hair.

She felt like a child again. She also had many very

embarrassing experiences, such as at her son Paul’s

soccer match where she accidently called out to her son

“Good girl”.

Feeling isolated, alone and waiting for family or friends

to visit, unable to go out or visit others, Margaret was

determined to find independence. Learning to drive was a

great challenge but after one year she accomplished this

dream and got her licence back. She loves the freedom

that this has given her; to attend meetings, visit friends and

go shopping. When buying petrol, she uses either pump

2 or 4 as they are the numbers that she is able to say. She

still finds it very difficult to read letters, let alone books that

she once so passionately enjoyed.

Margaret now communicates in a range of ways, including

now being able to say so many more words, names,

phrases and sentences. It took her five years to be able to

say her close friend Jenny’s name. Margaret now writes or

types words on her iPad that she is still unable to say. She

has a communication book that has pictures, key words,

and sentences that she is able

to show people in her everyday

environments to communicate

e.g. the type of bread or meat

she requires at a store. She also

asks the checkout person to

write the amount down that she is required to pay, as she

is unable to understand when an amount is spoken.

As Margaret began to accept her condition and the effects

it had on her life, she wanted to learn more about stroke and

help other people who had suffered a stroke. She has been

an active member and leader of the Albury Wodonga Stroke

Support Group for the past eight years. Margaret also loves

to regularly catch up with several of her girlfriends, who also

have aphasia, to do craft activities, and have a chat and a

laugh about the challenges of living with aphasia.

Margaret shares her experiences and knowledge with the

Allied Health Assistant Course at Wodonga TAFE. She has

worked with these students on a local Communication

Access Project where Albury Wodonga businesses

and service providers are provided with strategies to

improve access for customers/clients with communication

difficulties. They have also approached local government

and attend Albury ACCESS meetings, networking with

groups such as Age Concern and other disability services.

Margaret has also been involved in the Client Tutor

Programme in the Speech Pathology course at Charles

Sturt University for the past ten years. She provides groups

of six to eight third-year students with real-life situations

and examples of the difficulties that people with aphasia

are faced with every day. This hands-on approach provides

invaluable information that cannot be learned through

textbooks alone. The students, in turn, help Margaret with

particular communication challenges that she wishes to

overcome, for example, developing a list of common written

sentences that she can select from when writing an email.

Each day presents new challenges and successes and

these keep Margaret optimistic. She truly loves to teach

and interact with her students. She, in turn, has the

opportunity to provide a service that will help others, and

she feels valued and needed. It is through advocating

and promoting knowledge of strokes and communication

disabilities where she feels like she is making a difference.

This work has had an immensely positive effect on her self-

esteem and confidence.

by Jenny Kilo

Marion Vile

Senior Speech Pathologist, Albury-Wodonga Health

Start the Conversation... Margaret’s story